Not the typical elder parent. I’m the primary caregiver for my brother Alex. He’s just a couple of years younger than me (I’m in my 40s) but has severe disability. We always knew this day would come. I was worried as my parents got older, and now that they’re not around, it’s all fallen on me. My family is “great” and “supportive” but I can’t just live because of this massive responsibility. I’ve had relationships end because of it, had to move out of my home to be closer to him, had to change jobs. You have no idea the strain this has put on me. Worst thing is my family doesn’t see it. They judge me for wanting help, but they’re not the ones caring for an adult 24/7. They paint me like a monster and I’m tired of this bs.
Hey, I completely understand the frustration you’re going through. It can feel like you’re alone in this at times, but just know there are people like us who can relate and sympathize with you.
Caring for someone with a severe disability is HARD. It sounds like you’ve sacrificed a lot to care for your brother, and it’s normal to feel overwhelmed. Don’t let your family’s lack of understanding define you. Its easy to speak from the outside but another thing to be going through it.
I’m so sorry that you’re going through this, and your family isn’t giving you the support you deserve. I can tell you really care about your brother and were put in a tough spot, and it’s only natural for you to need help. Maybe it’s time to have an honest conversation with your family about how hard this is. I’ve seen it a ton, everyone has an opinion except when it’s time to step up.
It’s so tough when those closest to you don’t understand the weight of your responsibilities. Maybe you can find ways to talk to them more openly about your struggles, or even seek out support groups or therapy to help you process your feelings.
Definitely reach out to your local community and see if there are any caregiving resources. Have you heard of respite care or adult day care? They’re great for catching your breath every now and then.
Yes, and even if your family might not understand, don’t ever feel like you’re a monster for needing help. You’re doing the most loving and selfless thing by caring for your brother, and it’s completely normal to need assistance.
I hope you find the support you deserve, both from your family and outside sources. Remember to also care for yourself, because without self-care, you won’t be able to give the best care to your brother.
You’ve got this, and always remember you are not alone in this journey. We’re here for you, and you deserve the support and understanding from your family. Keep doing what you’re doing and know that there are people who are grateful for your sacrifices.
Yes, it’s important to surround yourself with people who understand and are there for you. You deserve that support and love. And don’t forget, we’ll always be here to lend a listening ear if you need it.
Stay strong and remember to take breaks for yourself too. You’re doing an incredibly loving and challenging job, and it’s important to acknowledge your own needs. Look for local support groups or online forums where you can connect with others who are going through similar experiences – they will be a valuable source of encouragement and understanding. Keep up the great work, and remember that you have a whole community here cheering you on!
So hard managing everything in life. You just have to do the best you can!